This has been an interesting and very blessed week. I am writing from Germany and Tom is receiving his treatment as I type. We have prayed for this and continue to pray that the treatment will be a great benefit for him. We have certainly moved forward on the wings and prayers of angels. We cannot express our feelings when we consider all the prayers being offered on our behalf and the love people have extended to us and the arms that have been wrapped around us literally and figuratively. Friends like Sabina have helped us with German translation, others have messaged and reached out to us, Chris and Minna brought nose spray Chris has developed to protect us from the virus and we have truly felt lifted and loved.
We went to see our medical oncologist Doctor Suo for the first time on Wednesday. We expected that he would be annoyed at us for leaving the country for treatment and encourage us to remain in Canada and go with chemotherapy or some such treatment. We were wrong and he was thrilled for us. He said he was planning on trying to encourage us to join a Theranostic clinical trial being done in Vancouver. We are aware of the trial but we also know that trials are random and Tom may not actually be given the real treatment and felt we needed to move forward on our own and insure he gets the needed treatment. Doctor Suo suggested we may want to participate in DNA studies that may be of help to Tom, our family and others so we gladly did that and we met with the fellow over the studies and Tom gave a blood sample. Our radiation oncologist grabbed us and said that a neck scan he had Tom take this week showed cancer at the base of the skull and in the cranium and he wants to do radiation in the area if Germany doesn’t provide improvement this week.. He seemed okay with us going too. Tom has also let Doctor Collingridge know and Dr. Vrabec has always been in favour of us going. We feel like our medical personnel are now behind us too. Tom had researched this treatment as soon as he was diagnosed and has always felt good about it. We prayed and he qualified with the PSMA scan and we feel we are doing what we are suppose to do.
We spent Thursday organizing and packing up and Friday finally came with Paul driving us to the airport. I had known we would need special blessings to make this journey as Tom’s back problems have limited his abilities and I have never taken the lead in travelling and it is usually Tom taking care of me and seeing to my needs. This would be an entirely different situation and I prayed for strength and for angels from both sides of the veil. They certainly came from the moment we entered the Vancouver airport. When I asked if I could leave Tom at the front of the check-in line while I stood and moved up gradually, the woman in charge put both of us at the front of the line and we checked our bags and then the “walker” before boarding the golf cart for a ride to our gate. They took Tom to the plane in a wheelchair when it was time to go and we were off. We had upgraded tickets in order to have more comfortable seating and the flight went well. When we landed in Frankfurt the airline had provided two wheelchairs to get us thru the airport and they insisted that I sit in the second chair as they wheeled us thru the airport at a fast pace, picked up our luggage, got us thru customs quickly and then to the train station connected to the airport. They remained with us until they saw to it that we were set up for our train connection. When we moved down to train’s departure area another man appeared having been assigned to help us onto the train. We went into Frankfurt where yet another man appeared with a wheelchair to transfer us to our next and final train. A couple befriended us on our three hour journey and when we arrived at Erfurt, our destination, the husband jumped up to help us off the train. We connected with a bus in Erfurt and while boarding the bus I asked the woman ahead of us if this was the bus to Bad Berka and she grabbed our bags and got us settled on board. She talked to the bus driver to let him know we were to get off at the ZentralKlinik in Bad Berka before she got off at an earlier stop. We had arrived at our destination! In Europe things close on the weekend and in the evenings and, though we were able to check into our guest room, there was no cafeteria open in the hospital and only vending machine food available. We were exhausted, hadn’t really slept for two days nor eaten since we left the plane. They tested Tom for covid, we bought some vending machine sandwiches and as it was getting dark and cold outside tried to walk to our guest room down the road but being tired and uncertain where to go, we failed in our attempt to find the yellow kindergarten building they had told us to go to. I left Tom seated in the walker with the luggage and ran back to the hospital to ask for some help. The night receptionist was alone and could not leave her post but a cute nurse came along and hearing of our plight suggested we wait until she had a break and she would get us to our room in the kindergarten building. Her name was Ronje and she finally bustled us down the road with Tom in a wheelchair, carried our bags and walker up the stairs and made sure we were settled before leaving. She was our angel as had been so many others that day. We felt cared for every step of our journey. It is difficult for us to have to rely on others and Tom has a hard time not being able to work thru our travel agendas on our own but today we were more than grateful for the help we received. We had literally been lifted and carried.
Our next concern was food for the next day, I prayed all night for help and direction. We had some bars I had from my bag for breakfast and I had a strong feeling we needed to return to the hospital ready in our Sunday clothes in case we could make contact with the Bishop Tom had been communicating with and someone would come to give us the sacrament. I also felt that food would somehow be provided for us. At the ZentralKlinik they have organized check-in times when patients from all over the country and world line up to check-in. Sunday afternoon is one of the main assigned check-in times. We were hours early but they checked us in anyway and told Tom to go up to his assigned room to let them know he was there. He hurried back down with news that they had told him because he was checked in, he qualified for lunch and because they had an extra lunch that day they would allow his wife to eat with him. When we returned to his floor the nurse, appropriately named Christian, had a lovely hot pork roast dinner set out on a table in the visitors room with bottled water and juice. We were overwhelmed at what had just happened and how our prayers had been so literally answered in a way we could never have imagined. Our hearts and tummies were full. The Bishop said the missionaries would make contact with us but when we heard nothing, we returned to our room and had the sacrament on our own with a little bread from another vending machine sandwich I would be eating later for supper when Tom returned to hospital for the night. He would continue to revive his meals there now and I had enough to make it thru the night until the hospital cafeteria opened the next day.
Monday came which would be Tom’s treatment day. I returned to the hospital where we had WiFi and I could communicate with Tom. His area is considered to be an isolation area because the treatments offered there involve radioactive material. He spent the morning going thru tests and then just after noon he was administered lutetium 177 thru IV and then a water solution IV to wash it thru. He began drinking litres water as well to flush it thru his kidneys. They began scanning and could soon see that lutetium 177 was targeting the cancer sights. Wonderful! It was doing what it was meant to do. I was now able to purchase food at the cafeteria and stay in touch with Tom, our children and others as long as I was in the hospital and on their WiFi. It was somewhat lonely but I felt grateful to be there and have Tom being treated. I would walk home when it was dark having been able spend as much time talking to Tom as I could.
The guest rooms are literally in part of a kindergarten building. They are spacious and comfortable. I would take food to have for dinner and breakfast home with me and return to the hospital as soon as I could to make contact with Tom the next morning. I would spend most of the day in the lobby area, talk to Tom, read, connect with children and others and take care of any business Tom asked me to see to. It was lonely but I was near to Tom and he wanted me near.
He was now in a 48 hour isolation period so we could FaceTime but I could not go up to see him. So passed my next two days - Tuesday and the first part of Wednesday.